The DIA Events Page

Posted June 22, 2018
Produced by Edith Prentiss
DIA President

 To submit an event


Deadline 08/01  SHE BUILT NYC!  NYC residents are invited to submit nominations for women or events in women’s history that should be considered for future public commemorations. Please limit nominations to 3. Criteria for Nominations: Event, person, or group must have a *significant* connection to NYC. If an event, it must have happened at least 20 yrs ago; If a person of significance, they must be dead and must be known for an event, movement, or action that took place at least 20 yrs ago. Groups or categories of women, not bound by time, will be taken into consideration (e.g., single mothers, immigrant women, domestic workers, etc.)   2018 Nat’l Disability Employment Awareness Month (NDEAM) theme will be “America’s Workforce: Empowering All. Information about NDEAM, including specific ideas for how different types of organizations can participate Cooling assistance (max benefit $ 800 to buy & install an AC or fan in your home). Funds are limited and are distributed on a first-come-first-serve basis. You must be a U.S. citizen or a qualified alien with a documented medical condition aggravated by heat. There are income guidelines. You cannot apply online..  register for the TLC’s Accessible Dispatch newsletter  TLC’s Central Dispatch has been expanded to all 5 boroughs 646-599-9999 or 311

AAR Curb Pilot to apply call 877-337-2017 select #8 Say you want to apply for the Curb Pilot. Or download Wav Taxi Disability Protection under the NYC Human Rights Law Have You Had Difficulty Paying For or Accessing Prescription Drugs? We Want to Hear From You


ABLE Newspaper:  Education & Reform Act: Senate Democrats Vow To Kill Bill; NCD On Guardianship: Exploring Options For Greater Self-Determination; Care Staff Shortage: Bronx Organization Reports On Growing Workforce; Untapped Market: Needs of PWD Overlooked In Design and Promotion & Sports: Games, Soccer, Sports Guide & Baseball  NYC disability service facilitators   May  2018 Also available at the DIA Website. Featuring stories about: Electronic Visit Verification, Trump’s chronic “Foot-in-Mouth” condition, DIA’s activity and more . . .



Deadline 06/30  U.S. DOT is seeking public comment on amending its Air Carrier Access Act (ACAA) regulation on transportation of service animals. The Advance Notice of Proposed Rulemaking (ANPRM) on Traveling By Air with Service Advance Notice of Proposed Rulemaking (ANPRM), docket number DOT-OST-2018-0067.


Deadline 07/09  CMS Seeking Comment on Durable Medical Equipment Interim Final Rule that increases payments to suppliers for some DME and enteral nutrition in areas of the country ()rural areas, AK, HI & the territories) that are not subject to (DEMPOS) Competitive Bidding Process (CBP). These include. From 06/01-21/31 payments will return to the 2016 blended rates..The change is in response to stakeholder concerns about significant financial challenges created by the current rates, as well as concerns that the number of suppliers continues to decline. It is projected to result in a $70 M Medicare cost-sharing increase. This increase may be covered by supplemental insurance programs like Medigap, and for dual eligible beneficiaries, Medicaid pays the cost sharing. However, beneficiaries who do not have supplemental insurance or are not dual eligible will have increased cost sharing.


Deadline 7/17, Notice of Public Hearing & Opportunity to Comment on Proposed Rule regarding standards relating to Fire and Emergency Preparedness Guides, What are we proposing? The Fire Department is proposing to amend Chapter 4 of Title 3 of the Rules of the City of New York (RCNY), in the following ways: (1) renumber the existing section, 3 RCNY §408-02, as §401-06; (2) change the title of such section from “Residential Fire Safety Guides and Notices,” to “Fire and Emergency Preparedness Guides and Notices;” (3) amend such section to enhance the existing fire safety guide and notices that are distributed to all apartment building residents and building staff to include important information about emergency preparedness and non-fire emergencies; and (4) amend the distribution requirements for the Guide. Your input is strongly encouraged. Per below, if you submit comments in the formal rulemaking process, we ask that you kindly forward us a copy for our records.



DRA: Access to Wheelchair-Accessible Uber Vehicles in NYC DRA is investigating complaints about access to Uber for individuals who need wheelchair-accessible vehicles in NYC. They would greatly appreciate speaking with you if you have a disability that requires you to use wheelchair-accessible vehicles and you would like to use Uber’s transportation services. We would like to speak with individuals who do not have Uber accounts but are interested in using Uber, as well as individuals who have used Uber before. Rebecca Serbin < or 212-644-8644 or.


DRA is investigating problems students and family members who use mobility aids or have other disabilities participate fully in NYC’s schools. DRA’s goal is to advocate for solutions to help make schools usable for everyone as required by law. You can help improve NYC’s schools by sharing your family’s experiences. Rebecca Serbin 212-644-8644


NYLPI: Have you recently needed an Accommodation @ a Courthouse? Did you have difficulties finding / using an accessible entrance; did staff suggesting that you don’t need to or can’t serve on juries; inaccessible bathrooms, offices (clerk’s office, information center),courtrooms (lack of accessible seating, jury boxes, witness boxes, routes, etc); Problem getting information about accommodations (lack of knowledge by staff; lack of or unclear signage Maureen Belluscio 212-244-4664, Ext. 312, or


NYLPI - Do you put off visiting your doctor or medical services because they do not have accessible equipment or facilities? Outdated machinery & inaccessible healthcare facilities create barriers that prevent patients WDs from accessing the care they require. NYLPI wants to hear from you if you have experienced difficulties in accessing healthcare. NYLPI may be able to help you obtain accessible healthcare. or 212-244-4664 (voice) or 212-244-3692 (TTY)


Registration & Election Days

06.26 Federal Primary

07/16-20,  National Voter registration

09/13, State Primary Elections

11/06, General Election



3rd Tues. 1-2 PM ET Organizer's Forum has 515-739-1285 Passcode: 521847#, Through your computer  CART:

*NEW Every Tue 4 PM (beginning 6/12), Getting g it Right  RSVP with “Getting It Right Act” in the subject line include if you require a disability accommodations to participate

Every Tues 7 PM, Talk to us! Weekly social gathering for people aging with HIV (CBST, 130 W 30 St)

1st  Wed 6-8 PM 6:45 (for legal consult) Offer a presentation on housing topics, followed by Q&A Lawyers will be available for free consultation with residents (Bilingue: Español). (Goddard Riverside 593 Columbus Ave, b/t 88-89 Sts)

3rd  Wed  4 PM, ADAPT Disability Integration Act (DIA) Workgroup 605-472-5765 Code: 283693 focusing on helping activists advocate for ADAPT's signature legislation. 605-472-5765 questions Dawn Russell, Jennifer McPhail & Stephanie Woodward

3rd  Wed  5-7 PM, NAMI – Harlem(Chauncey Hooper Towers, 10 W 138 St)   A support group for friends/family of people dealing with serious mental illness and substance abuse

Last Wed every 3 months  9:30-11 AM, The Coalition to Protect the Rights of New York’s Dually Eligible (CPRNYDE 800-536-4275  Code: 2046219

Every Fri CaringKind Social Work Services (MMCC, 3450 DeKalb Ave, Bx) individual & family counseling for those affected by Alzheimer’s or related disorders

1st Fri 1 PM, Civic League of the Disabled (ICS 25 Elm St, BK, Fulton-Livingstone) 347-503-9032

1st Sat, 07  noon-1 PM, Heightened Senses: Take a Tour with Detailed Description & Touch (Rubin Museum ) RSVP:


SPORTS, RECREATION NYC Dept of Parks & Recreation 212-360-1430 or

Adaptive Hubs:

  1. Bx Rec Center, 1527 Jessup Ave, Bx; McCarren Play Center, 776 Lorimer St, Bklyn;

Gertrude Ederle Rec Center 232 W 60 St, Man:

Al Oerter Rec Ctr, 131-40 Fowler Ave, Queens;

Greenbelt Rec Center, 501 Brielle Ave, Walcott -Rockland Aves, Sea View Hospital, SI)

Adults must be a NYC Rec Ctr member to participate in Parks programs 212-360-1430


Every Sun  1-2 PM, WC Basketball, NY Rolling Fury Youth (Gertrude Ederle Rec Ctr 232 W 60 St, W End –Amsterdam)

Every Sun  2-3 PM, WC Basketball, Adult  (Gertrude Ederle Rec Ctr 232 W 6 St West End -Amsterdam Aves)

Every Sun 10:30-12:30- PM, Advanced Goalball for Adults This sport is played by two teams of three using a ball with bells inside. The ball is the size of a basketball but has twice as heavy. (Chelsea Rec Ctr, 430 W 25 St, 8-9 Aves) 

Every Sun (from 04/22) 12:30- 1 PM, Beginner Goalball classes for Kids and Teens with vision loss/blindness (Chelsea Rec Ctr, 430 W 25 St, 8-9 Aves) taught one-on-one by the NY Knights Goalball Team.

Every Sun (from 04/22) 12:30-1 PM, Balance and Mobility Class for Kids & Teens with low vision/blindness (Chelsea Rec Ctr, 430 W 25 St, 8-9 Aves)  Christopher Noel Accessibility Coordinator 212.360.3319 (Office)
Every Mon 4 PM (May & June), Riverside Clay Tennis Association Free Adaptive & WC Tennis for Children & Adults WDs (Riverside Park, 96 St)  No equipment needed. Just bring yourself and whatever adaptive device you use, if any (wheelchair, walker, crutches, orthotics, prosthetics, etc) Questions:

Every Tue  3:30-4:40 PM, Adaptive Yoga  (Burke Sports Center Gym, Main Campus) Seated class is modified to meet the participants’ needs and goals

Every Tue. 5-6:30 PM (02/05-03/18) Jan–Apr  5-6:30 PM, Hand Cycle Training Program (Burke Main Hospital – Ground Floor 2 West Gym (enter Main Hospital) Session 2 Mar-Apr 1-2x week This indoor program incorporates strength, flexibility & endurance training. You will be fitted to and trained to use a hand cycle in preparation for outdoor riding.

Every Tue  7-9 PM, WC B Ball, Axis Project Adult (348 E 54 St, 1-2 Aves, Man)

Every Tue  7:30-9:30 PM, WC B Ball, Adult (Al Oerter Rec Ctr, 131-40 Fowler Ave, College Point Blvd, Queens)

Every Wed  7:30-9:30 PM WC B Ball, Adult (W Bx Rec Ctr, 1527 Jessup Ave, 172 St & Cross Bx Expressway, Bronx)

Every Th  1:30-2:30 & 2:45-3:45 PM, Roll Call WC Dance (Brandywine Living, 70 Pinelawn Ave, Commack)

Every Th  6-7 PM, WC B Ball, Adult (E 54 Rec Ctr, 348 E 54 St, 1-2 Aves)

Every Th  6-8 PM, WC B Ball (St. Mary’s Rec Ctr, 450 St. Ann’s Ave, Bx) All ages & abilities Rodolfo Guevara 212-360-3341 or

Every Sat   2-6 PM, Table Tennis (Burke Sports Center Gym, Main Campus) Required registration form can be completed at the practice–no experience necessary. All ages and abilities!


06/23, Paedergat Park; 06/30, Scarangella Park  10-1 PM, NYC Parks’ Brooklyn Rec Fitness Festivals. We are expecting the Kavadlos, FLO Fitness, Team Wingate, Skaterobics and other fitness professionals to attend some of the dates. It would be a great opportunity for you to be part of a networking environment broadening the idea of what it means to live a healthy lifestyle. There will be fitness stations surrounding Yoga, Strength & Cardio Circuit, & Zumba classes with 5-10 minute demos of workouts such as battle ropes, calisthenics, toddler fitness, core, stretching, martial arts, dance, and a blow up obstacle course. Participants will be encouraged to try stations and classes and will receive stickers on their bracelets when completed. After a certain amount of stickers, participants will receive a water bottle, sweatband, and council member giveaways. Chris Noel Accessibility Coordinator 212.360.3319, or


*NEW 07/28  8-4 PM, Wheeling Forward & Life Rolls On "They Will Surf Again Adaptive Surfing Clinic (Rockaway Beach, Beach & 69 Street  Beach 67 stop on the A train) a thrilling and exciting day full of smiles and happiness Participants: Volunteers


COMPUTER CLASSES ETC FOR KIDS WITH SPECIAL NEEDS (Tech KIDs Unlimited Financial aid application) /  


Kids (7-13) 

*NEW 06/25-06/29 Making a Stop Motion Animation  

*NEW 07/09-07/13 Design a Game with the Transit Museum


Teens & Young Adults (14-21) 

*NEW 06/25-06/29 Make a Stop Motion Animation

*NEW 07/09-07/20 Design a Game with the Transit Museum



Until 08/09  5-9 PM , Cocktails @ Cooper Hewitt (2 EE 91 St)  $13.evening online/15 @door, children under 5 free, 5-17 $7 info #DrinkUpDesign

Until 09/03 Sun & Weds, Access+Ability (Cooper Hewitt, 2 E 91 St) features over 70 innovative designs developed in the last decade. From low-tech products that assist with daily routines to the newest technologies, the exhibition explores how users and designers are expanding and adapting accessible products and solutions in ways previously unimaginable.

06/24-27, United Spinal’s Roll on Capital Hill Legislative and Advocacy Conference  (Wash DC) 

06/26-28, 2018 National APSE Conference (Lake Buena Vista, FL)



06/23  2-3 PM, FLOW! Getting Around the Changing City  Embark/Disembark: The Urban Mobility Variety Show at Figment NYC (Figment NYC- Colonel’s Row, Governors Island)


06/24  10-2 PM, Shred-a-thon, (Green market, E 92 St & First Ave)

06/24  6-8 PM, CB 10 Public Safety Committee: Active Shooter Panel Discussion (163 W 125 St, Art Gallery, 2nd Floor)


06/25  10-noon, Brooklyn DD Council - Borowide Meeting (Bk)

*NEW 06/25  1 PM, 2nd RETAIN (Retaining Employment & Talent after Injury/Illness Network) Prospective Applicant Q&A 888-989-6419 Passcode: 1023755 Audio recording & written transcript from the 1st session are posted on ODEP’s website. The 2nd session will be recorded and posted. Deadline 07/23


*NEW 06/26, Federal Primary Election -


*NEW 06/27  ,City Council Speaker Corey Johnson & and Transportation Committee Chair Ydanis Rodriguez  public oversight hearing to evaluate the latest mitigation plans for the 2019 L train tunnel closure (Cardozo Sch.of Law , 55 Fifth Ave, 14 St) Emailed testimony  subject line: L TRAIN SHUTDOWN TESTIMONY.  Deadline 6 pm on 06/29,  RSVP:

*NEW 06/27  2 PM, Discovering ME: Using a Youth –focused Discovery Processto Build Customized Work-based Experiences

06/27  5:30 PM doors open, Mayoral Town Hall (PS 191,300 W 61 St, West End Ave) RSVP by 6/26 @ 5,, or 212-788-2781

*NEW 06/27  6-8 PM, EmpoweredNYC (Manny Cantor Center, 197 E Broadway)


*NEW 06/28  3 PM,  How to Navigate Medicare and Make Smart Financial Decisions  $40


*NEW 06/28  5:30-7:30 PM, Making NYC’’s Tech Sector More Inclusive (CSS, 633 3 Ave  floor 10) Light refreshments will be served. RSVP, to ensure you entry into the building, Jennie Krems  or 212.614.5407.

06/28  6-8 PM, Tenement Museum ASL TOUR (No Voice) Shop Life  (103 Orchard St, Delancey St)  Family-run stores filled the lower level of 97 Orchard for over a century, where they struggled to adapt to an ever-changing neighborhood and achieve the American Dream. Visit the 1870s German saloon of John & Caroline Schneider, and use interactive media to trace the stories of turn-of-the-century kosher butchers, a 1930s auctioneer, & 1970s undergarment discounters. Limited Wheelchair Capacity Call 1-877-97LESTM in advance for wheelchair tickets Ground Floor  90 minutes  followed by foods of the LES. Recommended Ages 12+ Tickets are free but reservations are required.  or  877-975-3786 Ellysheva Zeira, Education Associate for Access 646.518.3038


*NEW 07/02  4-7 PM, NYCDOT (Park Row & Pearl St is evaluating tactile surface treatments that enable blind and low-vision pedestrians to navigate public spaces safely and independently. A raised tactile surface treatment installed on the street to navigate pedestrian spaces that mix with bicycle paths. Complete a brief survey about your experience. Provide recommendations and feedback. The evaluation will take approximately 20 minutes to complete. RSVP Hilda Cardenas at or 212-839-3260


*NEW 07/07  4-6 PM, Whitney Signs (ASL): Mary Corse (99 Gansevoort St, Floor 7) reservations required or 212 671-1823 No ASL students


*NEW 07/10  3-4:30 PM, Disability, Diversity, and Intersectionality: An American Journey for CILs  Register in advance at:

*NEW 07/10, 2018 6:30  - 8:30 PM EmpoweredNYC (Hostos, 475 Grand Concourse, Room C-391,Bx)


*NEW 07/11  1:30-3 PM, Access Board (Access Board Conf Ctr, 1331 F St, NW, # 800, Washington, D.C) The public is welcome to attend in person or Webcast Fragence free meeting A public comment period will be held during the final 15 minutes of the meeting. Those interested in making comments in person or by phone should send an email to Rose Bunales by 07/05 with "Access Board meeting - Public Comment in the subject line. Please include your name, organization, state, and topic of your comment in the body of the message.

*NEW 07/11  3-4 PM, Employment First State Leadership Mentoring Program Community of Practice Monthly Webinar


*NEW 07/12  Get to the Core of It: Promising Practices in Systems Advocacy 

*NEW 07/12  2:30-4 PM, Save the Date Access Board Will review requirements in the ADA and ABA Accessibility Standards for transportation facilities. Presenters will cover provisions for bus stops and shelters, rail stations, and train stations.

*NEW 07/12 2:30 PM, ADA National Network Learning Session: The Disaster Response Efforts of the Department of Homeland Security (DHS) Office for Civil Rights and Civil Liberties

Registration deadline midnight 07/11

*NEW 07/12  10 – noon, EmpoweredNYC (JFK Jr. School, 57-12 94 St, Queens)


*NEW 07/15  Disability Pride Parade (Union Sq – up 6th Ave to Madison Sq Park)



NY Section 8 Waiting Lists Open Now - Affordable Housing Online North Country Center for Independence (NCCI) coordinated a Capacity Building for Independent Living Center Opportunity (CBILCO) grant, which address the issue of accessible transportation and health care access in a rural service area they expanded the scope of their “How To” Manual to emergency planning and survival skills in a rural/wilderness area. It provides a wide variety of tips


New Fact Sheets Explain Laws That Protect People with Disabilities: Americans with Disabilities Act Fact Sheet; 2010 Standards for Accessible Design Fact Sheet; Fair Housing Act Fact Sheet; Olmstead U.S. Supreme Court Decision Fact Sheet; Affordable Care Act Fact Sheet; Help America Vote Act Fact Sheet; Social Support and Networking Fact Sheet Latest LDCEP Topic Talk on 2018 Budget Issues The LDCEP Topic Talk provides a monthly background about an important skill or issue followed by a peer discussion  Camp Marcella, ADA Accessible Sleep-Away Camp for Campers w/ Differing Abilities. Adults w/ Disabilities, Children w/ Disabilities, Children who are Blind/Visually Impaired.


NDI (Nat’l Disability Institute) Assistive Technology Loan Program or 202-449-9521  NJ/NY


The End of Therapy Caps - Congress finally approved the end of any limit on therapy services as of earlier this year, retroactive to January 2018. The $1,980 cap on physical therapy and speech-language pathology services, and the $1,980 cap on occupational therapy is now eliminated. Medical review of individuals’ cases is still required on expenses higher than $3,000 through 2027.


Braille Booklets for Subway to make wayfinding and transit more accessible! Subway trains and stations are full of signs that help riders know where they are and where they're going. This signage is not always useful to people who are blind or visually impaired. Antonio Guimaraes is creating braille booklets listing the lines and stations for subways and is seeking feedback from braille readers. The subway booklets include a list of lines and stations, plus transfer points along the way. or 212- 621-0627


FAA Updates Guidance on Airport Accessibility   The Federal Aviation Administration (FAA) has updated its guidance on airport accessibility to address relief areas for service animals and other topics. The revised Advisory Circular on Access to Airports by Individuals with Disabilities includes requirements and recommendations on service animal relief areas and lists advocacy and other organizations that can be consulted when installing them. It also provides guidance on accessible communications tools and signage, vehicle and transportation systems, aircraft and air carrier facilities, and boarding assistance. The circular explains requirements airport operators have under the ADA, the Air Carrier Access Act, the Rehabilitation Act of 1973, and the Architectural Barriers Act. Visit the FAA's website for further information. A Transition Guide to Postsecondary Education and Employment for Students and Youth with Disabilities. To assist students & youth with disabilities to achieve post-school and career goals.  Access Denied captures the heart of the accessible taxi landscape through the eyes of a wheelchair user.  Disability Language Style Guide National Center on Disability and Journalism - is intended for journalists, communication professionals, and members of the general public who are seeking the appropriate and accurate language to use when writing or talking about people living with disabilities. Accessible Shared Streets: Notable Practices and Considerations for Accommodating Pedestrians with Vision Disabilities Playlist (10 talks) Designing for disability Good design -- and smart technology -- should fuel inclusivity. These talks show how tech and design can empower


JOBS, FELLOWSHIPS & SCHLARSHIPS Disability Rights New York (DRNY) is hiring for multiple positions throughout their Brooklyn, Rochester and Albany offices. If you need any accommodations to fulfill the application process, Human Resources director Elizabeth Taylor 518-432-7861 or TTY 518-512-3448.


NYSILC is seeking one candidate to serve as a volunteer council member appointed by the NYS Regents to a three-year term. NYSILC seeks diverse membership, including individuals with various disabilities, cultures, ages, and gender identification, geographically located throughout the state. Based on current council membership, NYSILC can enhance its purpose by encouraging applicants from the greater New York City area, who have a disability with a diverse race/ethnicity and or gender identification. Individuals should complete an Application Form in its entirety (which requests two references with contact information) and include a copy of their resume. This information must be sent electronically to ensure equal access. Word or text copies preferred. If sending a PDF, it must NOT be a PDF image, as they are not accessible. Send complete applications to by Wednesday, June 27, 2018. Refer to the NYSILC background and member expectations or more information.. If you have any questions about the application, process, or further duties of council members, contact Brad Williams at the NYSILC office: (518) 427-1060 (voice/TTY), (518) 427-1139 fax, or


Do you ever need help going shopping, to a doctor’s appointment, reading mail, light housekeeping, laundry, etc. We can provide you help even if you only need an hour.  We can also read to you over the phone. The charge will vary depending on what you need. We can also give you emergency help when you most need it. he charge for this service is a one-time fee of $20 if you need a permanent helper, if it is just a one-time helper the fee is $5. 929-340-3132


Paid Students Internships for College Student at Bronx CB #6  ($12-15 per hour) Please e-mail a resume and cover letter to John Sanchez AAPD Career Center is a tool for job-seekers WDs to search for employment opportunities & a place for employers to post jobs and connect with potential employees WDs Feedback Survey


CALL TO ACTION;jsessionid=00000000.app328a?cmd=display&page=UserAction&id=741&NONCE_TOKEN=4B364A8A69AE6DB304196B5D78A241F2 Protect the School Discipline Guidance, Discriminatory school discipline creates barriers for children of color and children with disabilities to realize their potential in school, The Obama administration released guidance to schools on how they can protect these students - call on Secretary DeVos to protect the guidance! Rescinding the guidance would send a dangerous message that the federal government is not concerned with protecting the rights of all children. We cannot allow the progress we’ve made to be taken away.


National Disability Voter Registration Week Social Media Toolkit (PDF) Sample social media posts and graphics to promote National Disability Voter Registration Week.


Keep your eye on: Air Travel Rights - Sen Tammy Baldwin (WI) & Rep. Jim Langevin (RI) are championing air travel rights for PWDs with the introduction of the Air Carriers Access Amendments Act S. 1318 & H.R. 5004, which increase penalties for damaged wheelchairs, and allowing air travelers to sue in court to recover damages; ensure higher standards for accessibility, safety and airport and airline employee training; help create a passengers WD bill of rights along with a Federal advisory committee on the air travel needs of passengers WDs. Petition to Gov Cuomo to save ICS Questions Sharifa Abuhamda Call in for Empower Care Act (S2227) extends & improves Money Follows the Person getting PWDs & Srs out of nursing homes & back to their communities. Sen 202-224-3121 TTY 202-224-3091 a petition calling on Google maps to be accessible. (Years ago, we reached out to Google about Google Transit which also lack accessible info which the MTA used on their website!) Urge Congress to Extend Money Follow the people. 


Please Sign Petition for Disability (DD & ID) Housing!


Disability Integration Act, HR 2472 / S 910. Contact your Senator & Representative, urge them to cosponsor this bipartisan, bicameral legislation To sign on, they would need to contact Amy Bos in Representative Sensenbrenner's office. Here's a link to the letter he sent inviting cosponsors: Sign on;jsessionid=1078AD28849FE3D8DC50D80F076C72 2B.app234b?pagename=SD_Grassroots_Advocacy_Petition_Page&utm_source=email&utm_medi um=advocacy_professionals&utm_content=stop-diabetes-insulin-2-lnk&utm_campaign=ADV & ew-yorkers-with-disabilities-c3e14a93-cc9c-4d6e-ae5a-694c83664217s_src=email_advocacy_professionals&s_subsrc=stop-diabetes-insulin-2-lnk Call on Congress to hold hearings with all entities in the insulin supply chain to identify the reasons for the dramatic increases in insulin prices and to take action to ensure that all people who use insulin have affordable access to the insulin they need.  Congress must protect people with disabilities and pass H.R. 3730 to exempt complex rehab manual wheelchair components from Medicare's Competitive Bidding Program. These important components are used by a population of people with significant disabilities such as ALS, cerebral palsy, multiple sclerosis, muscular dystrophy, spinal cord injury, and traumatic brain injury, who depend on appropriate components, repairs and adjustments in order to maintain their mobility and independence. Help Stop Attacks on the ADA! HR 620 would give businesses that have denied us access for over 26 years additional time to comply with the ADA, while removing any incentive for businesses to come into compliance before receiving a notification. These businesses will face no consequences for their years of discrimination.



Deadline 06/25 NYSILC 2018 Consumer Statewide Needs Assessment Survey a statewide survey for PWDs in NYS. Survey results will help prioritize services supporting continued or expanded Independent Living locally, regionally, and statewide To further encourage you to reply, we will enter you in a drawing for a $50 gift card (only if you opt-in).Otherwise, you won’t need to enter any identifying information. If you have difficulty navigating in Survey Monkey, click on the Word version of the survey, mark up and save your responses, and email them back to You can also contact the council at (518) 427-1060 if you need someone to assist you in the facilitation of the survey over the phone. The NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL) is looking for adults aged 18-62 with disabilities to complete an online survey about getting and using health insurance and health care services – the National Survey on Health Reform & Disability.  The online survey is fully accessible for mobile devices and screenreaders, but if you prefer to take the survey over the phone or have any questions about participating, please call toll-free 855.556.6328 (Voice/TTY) or  NYS conflict free evaluation & enrollment center Medicaid Managed Long Term Care experience !


Deadline 06/18, barriers and gaps for New York’s long term care system. It has been brought to our attention that many places have begun to ask people with disabilities to join a voluntary registry The goal of this poll is to help us determine if this is something that Link20 should act on. You are being asked to participate in a survey concerning the use of smartphones in the blind and visually-impaired community. This is an effort to test methods that will assist blind and visually-impaired pedestrians living in New York City to more safely cross intersections while navigating City streets. One of the methods that we are investigating are new smart phone applications, which may allow blind or low-vision pedestrians to navigate more confidently. Thus, we are trying to gather information on the use of smart phones in the blind and visually-impaired community.


Deadline 06/18,  is  a survey on barriers & gaps for New York’s long term care system. The value of this survey will be determined by the number of people who complete it. If you have any questions, please contact the Aging and Long Term Care Team

EM Prentiss

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